THE Miracle Kingdom (17)

“Every night I lie in bed The brightest colors fill my head A million dreams are keeping me awake I think of what the world could be A vision of the one I see A million dreams is all it’s gonna take A million dreams for the world we’re gonna make”  – “A Million Dreams” … Continue reading THE Miracle Kingdom (17)

The Night When Christmas Came Early (16)

"It is easy to...wring our hands and bemoan all of the bad things that happen in this world. It is much harder to...pick up the shovel and go to work. It is my experience that miracles are real and living things. They are built with sweat and toil and hard work from the foundation up … Continue reading The Night When Christmas Came Early (16)

Hail to the Anti-Bully

(This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!) Enter the word "bullying" into an online thesaurus, and over 400 synonyms like "browbeating, domineering, persecuting, unmannerly" and - my favorite - "yobbish" arise. (Author's aside: Wouldn't it be better if we started calling … Continue reading Hail to the Anti-Bully

The Wish Day That Epilepsy Stole (15)

She had no memories of the horror that had been. Only of the pleasures that had not. Like a battered soldier who thanks God that his life is still in tact, but then shakily stands to take in the carnage of the bloody battlefield, Mercy surveyed the damage and wept. That is the backhanded slap of epilepsy: the soft blessing of release and protective amnesia super glued to the stinging pain of what has been lost on the field.

Epilepsy’s “New Normal”

"Do kids with epilepsy fight to perform normal childhood activities well? Absolutely. Does that make their experiences with them normal? No...Their childhoods are not normal: they are extraordinary."

A Magical Kingdom, Part 2 (14)

"Here you leave today and enter the world of yesterday, tomorrow, and fantasy." -Placard at the Magic Kingdom, Walt Disney World THE WORLD OF YESTERDAY We were four days into our daughter's Wish Trip and on our final day at a Disney Park. Up until this point, Pierson had been positively reluctant to meet any … Continue reading A Magical Kingdom, Part 2 (14)

Are Children with Epilepsy Healthy?

NEW BLOG!! In honor of November being Epilepsy Awareness Month. "The sad truth is that this type conversation for those within the epilepsy community is normative. People do not understand the risks, losses, and cost-versus-benefit weigh outs that occur on a daily basis for individuals battling epilepsy. They see seizures as an annoyance, not a life-altering - let alone life-threatening - disorder."

When Comparison Kills Compassion

"It's okay, Lloyd. None of our parents are perfect! I mean, my mom is weird and collects sea shells. Your dad levels cities and attacks innocent people. So, they've all got their quirks, you know?" - New Lego Ninjago Movie Trailer, Release date: Fall 2017. I took my kids to the theatre recently and this hysterical quote … Continue reading When Comparison Kills Compassion

Why I Blog Our Story

  It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story

101 Ways to Help a Family Fighting Chronic Illness, Part Two

In my last blog, I listed 1-51 of 101 Ways to Help a Family Fighting Chronic Illness. This is the second part of that list! As I mentioned last week, the bulk of credit for these ideas go to the many people who've blessed either us or other hurting families we know, with their love … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part Two