Why I Blog Our Story

  It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story

101 Ways to Help a Family Fighting Chronic Illness, Part Two

In my last blog, I listed 1-51 of 101 Ways to Help a Family Fighting Chronic Illness. This is the second part of that list! As I mentioned last week, the bulk of credit for these ideas go to the many people who've blessed either us or other hurting families we know, with their love … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part Two

101 Ways to Help a Family Fighting Chronic Illness, Part One

We've all been there. A family or loved one is reeling from a new diagnosis, or still being tossed by recurring storms from an old diagnosis. We want to help, but honestly words escape us, distance limits us, and confusion immobilizes us. We feel inept pondering where to even begin to lighten their heavy load. … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part One

A Magical Kingdom (13)

"When your child has epilepsy, there are many many times when what you plan, what you've hoped for, what you intend to do on any certain day is lost to seizures, their side effects or the side effects of medicine...it is...learning to live with the constant expectation that every plan on your calendar is always tentative. Always. That's why, watching our daughter chat it up with Tink on our first morning in the Magic Kingdom meant more to us than meeting any president elect could have ever meant that day. A plan for a child with uncontrolled epilepsy to meet her favorite Disney pal: flitterifically flawless."

When God Gives You More Than You Can Handle

"God won't give you anything you can't handle." - an old adage not actually found anywhere in the Bible "Just remember! God won't give you anything more than you can handle!" Haven't all of us have heard these words offered as encouragement? People mean well. They're trying to help a hurting soul tap into some … Continue reading When God Gives You More Than You Can Handle

I Wanna See You Be Brave: The Story of A First Year at Church Camp

"Everybody's been there, Everybody's been stared down by the enemy Fallen for the fear And done some disappearing, Bowed down to the mighty... Maybe there's a way out of the cage where you live Maybe one of these days you can let the light in... Show me how big your brave is And say what … Continue reading I Wanna See You Be Brave: The Story of A First Year at Church Camp

Cry Out All the More

"Many were sternly telling him to be quiet, but he kept crying out all the more, "Son of David, have mercy on me!"" Mark 10:48 One of the first things you're told when your child is diagnosed with epilepsy is: there is no cure. Directly on the heels of that revelation, you're told the condition … Continue reading Cry Out All the More

What Living with Epilepsy is Like

What is it like parenting a child with epilepsy? What is it like having epilepsy? Those feelings and experiences can be hard to define. Because the truth is, they change. Some days, living with epilepsy feels like: routine. On those days,  epilepsy takes a backseat place in our daily life. We automatically pull supplements, load … Continue reading What Living with Epilepsy is Like

Hurray for Hollywood! (11)

"There is something that exists within the human soul that awakens when suffering is great...It is like a mechanism that comes awake and helps us fight...There is something inside all of us that hangs on to life, that refuses to let it go."  -Henri Landwirth, Founder of Give Kids the World Village, Gift of Life I don't … Continue reading Hurray for Hollywood! (11)