"Do kids with epilepsy fight to perform normal childhood activities well? Absolutely. Does that make their experiences with them normal? No...Their childhoods are not normal: they are extraordinary."
NEW BLOG!! In honor of November being Epilepsy Awareness Month. "The sad truth is that this type conversation for those within the epilepsy community is normative. People do not understand the risks, losses, and cost-versus-benefit weigh outs that occur on a daily basis for individuals battling epilepsy. They see seizures as an annoyance, not a life-altering - let alone life-threatening - disorder."
"It's okay, Lloyd. None of our parents are perfect! I mean, my mom is weird and collects sea shells. Your dad levels cities and attacks innocent people. So, they've all got their quirks, you know?" - New Lego Ninjago Movie Trailer, Release date: Fall 2017. I took my kids to the theatre recently and this hysterical quote … Continue reading When Comparison Kills Compassion
It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story
In my last blog, I listed 1-51 of 101 Ways to Help a Family Fighting Chronic Illness. This is the second part of that list! As I mentioned last week, the bulk of credit for these ideas go to the many people who've blessed either us or other hurting families we know, with their love … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part Two
We've all been there. A family or loved one is reeling from a new diagnosis, or still being tossed by recurring storms from an old diagnosis. We want to help, but honestly words escape us, distance limits us, and confusion immobilizes us. We feel inept pondering where to even begin to lighten their heavy load. … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part One
"Everybody's been there, Everybody's been stared down by the enemy Fallen for the fear And done some disappearing, Bowed down to the mighty... Maybe there's a way out of the cage where you live Maybe one of these days you can let the light in... Show me how big your brave is And say what … Continue reading I Wanna See You Be Brave: The Story of A First Year at Church Camp
What is it like parenting a child with epilepsy? What is it like having epilepsy? Those feelings and experiences can be hard to define. Because the truth is, they change. Some days, living with epilepsy feels like: routine. On those days, epilepsy takes a backseat place in our daily life. We automatically pull supplements, load … Continue reading What Living with Epilepsy is Like