The Wish Day That Epilepsy Stole (15)

She had no memories of the horror that had been. Only of the pleasures that had not. Like a battered soldier who thanks God that his life is still in tact, but then shakily stands to take in the carnage of the bloody battlefield, Mercy surveyed the damage and wept. That is the backhanded slap of epilepsy: the soft blessing of release and protective amnesia super glued to the stinging pain of what has been lost on the field.


A Magical Kingdom, Part 2 (14)

"Here you leave today and enter the world of yesterday, tomorrow, and fantasy." -Placard at the Magic Kingdom, Walt Disney World THE WORLD OF YESTERDAY We were four days into our daughter's Wish Trip and on our final day at a Disney Park. Up until this point, Pierson had been positively reluctant to meet any … Continue reading A Magical Kingdom, Part 2 (14)

A Magical Kingdom (13)

"Sometimes the smallest things take up the most room in your heart." - Winnie the Pooh "Now these three remain: faith, hope and love. But, the greatest of these is love."  I Corinthians 13:13 Some may recall a certain, shall we say, "fever" that had fallen upon the USA in the fall of 2016. A … Continue reading A Magical Kingdom (13)

Fantastic Fantasmic! (12)

"We don't make mistakes...just happy little accidents!" - Bob Ross, American Painter Our most unforgettable evening at Disney was a mistake.  When you only visit once a decade, you're there with your kids for the first time, and you're currently weighing your toddler's no-nap, fatigue-induced insanity level against your older child's seizure frequency,  errors are bound to … Continue reading Fantastic Fantasmic! (12)

Hurray for Hollywood! (11)

"There is something that exists within the human soul that awakens when suffering is great...It is like a mechanism that comes awake and helps us fight...There is something inside all of us that hangs on to life, that refuses to let it go."  -Henri Landwirth, Founder of Give Kids the World Village, Gift of Life I don't … Continue reading Hurray for Hollywood! (11)

Sea World (10)

"Our partners' help is not limited help...They always find ways to support us...No corporate supporter has ever left Give Kids the World." "No one can know the goodness that is set in motion by your participation and support...Every act of kindness, every service and dollar donated, sets off its own series of unseen ripples."  - Henri … Continue reading Sea World (10)

Our Star Amongst Thousands (9)

"When you are told that your child is sick, shock is the first reaction...Next comes numbness. Right on top of that is anger and fear. One day, your biggest worry is the car payment, and the next day your child is fighting for her life. It is an awful, helpless feeling. The last year and … Continue reading Our Star Amongst Thousands (9)

Epcot, Take Two (8)

"The Lord bless you and keep you; the Lord make his face to shine upon you and be gracious to you; the Lord lift up his countenance upon you and give you peace." Numbers 6:24-26 ESV We re-entered Epcot in the evening with a beautiful fairy. (Pixie dust had transformed Mercy into Tinker Bell at the … Continue reading Epcot, Take Two (8)

Bibbidi Bobbidi Boo! (7)

"Yes, salagadoola means Mechicka booleroo But the thing -a- mabob that does the job Is bibbidi-bobbidi-boo"   - Lyrics to Bibbidi Bobbidi Boo Little known fact: I played Cinderella in my sixth grade elementary school play. (The fact that sixth grade was still considered elementary school gives you a clue as to my age.) I lit … Continue reading Bibbidi Bobbidi Boo! (7)

Epcot, Take One (6)

"I see life differently from someone who has not seen life's dark side. Moments are precious, every moment, and because of what I have experienced, I know and appreciate this." - Henri Landwirth, Founder of GKTW Village On our way out of the Village that first morning, we stopped by the Gingerbread House to borrow children's videos for … Continue reading Epcot, Take One (6)