NEW BLOG: "...this blog will touch on the tech that has helped in our fight against epilepsy the most routinely."
“Every night I lie in bed The brightest colors fill my head A million dreams are keeping me awake I think of what the world could be A vision of the one I see A million dreams is all it’s gonna take A million dreams for the world we’re gonna make” – “A Million Dreams” … Continue reading THE Miracle Kingdom (17)
"It is easy to...wring our hands and bemoan all of the bad things that happen in this world. It is much harder to...pick up the shovel and go to work. It is my experience that miracles are real and living things. They are built with sweat and toil and hard work from the foundation up … Continue reading The Night When Christmas Came Early (16)
"Here you leave today and enter the world of yesterday, tomorrow, and fantasy." -Placard at the Magic Kingdom, Walt Disney World THE WORLD OF YESTERDAY We were four days into our daughter's Wish Trip and on our final day at a Disney Park. Up until this point, Pierson had been positively reluctant to meet any … Continue reading A Magical Kingdom, Part 2 (14)
"The sad truth is that this type conversation for those within the epilepsy community is normative. People do not understand the risks, losses, and cost-versus-benefit weigh outs that occur on a daily basis for individuals battling epilepsy. They see seizures as an annoyance, not a life-altering - let alone life-threatening - disorder."
It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story
"Everybody's been there, Everybody's been stared down by the enemy Fallen for the fear And done some disappearing, Bowed down to the mighty... Maybe there's a way out of the cage where you live Maybe one of these days you can let the light in... Show me how big your brave is And say what … Continue reading I Wanna See You Be Brave: The Story of A First Year at Church Camp
What is it like parenting a child with epilepsy? What is it like having epilepsy? Those feelings and experiences can be hard to define. Because the truth is, they change. Some days, living with epilepsy feels like: routine. On those days, epilepsy takes a backseat place in our daily life. We automatically pull supplements, load … Continue reading What Living with Epilepsy is Like
"Our partners' help is not limited help...They always find ways to support us...No corporate supporter has ever left Give Kids the World." "No one can know the goodness that is set in motion by your participation and support...Every act of kindness, every service and dollar donated, sets off its own series of unseen ripples." - Henri … Continue reading Sea World (10)
"The Lord bless you and keep you; the Lord make his face to shine upon you and be gracious to you; the Lord lift up his countenance upon you and give you peace." Numbers 6:24-26 ESV We re-entered Epcot in the evening with a beautiful fairy. (Pixie dust had transformed Mercy into Tinker Bell at the … Continue reading Epcot, Take Two (8)