Why I Blog Our Story

  It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story

101 Ways to Help a Family Fighting Chronic Illness, Part Two

In my last blog, I listed 1-51 of 101 Ways to Help a Family Fighting Chronic Illness. This is the second part of that list! As I mentioned last week, the bulk of credit for these ideas go to the many people who've blessed either us or other hurting families we know, with their love … Continue reading 101 Ways to Help a Family Fighting Chronic Illness, Part Two

When God Gives You More Than You Can Handle

"God won't give you anything you can't handle." - an old adage not actually found anywhere in the Bible "Just remember! God won't give you anything more than you can handle!" Haven't all of us have heard these words offered as encouragement? People mean well. They're trying to help a hurting soul tap into some … Continue reading When God Gives You More Than You Can Handle

Cry Out All the More

"Many were sternly telling him to be quiet, but he kept crying out all the more, "Son of David, have mercy on me!"" Mark 10:48 One of the first things you're told when your child is diagnosed with epilepsy is: there is no cure. Directly on the heels of that revelation, you're told the condition … Continue reading Cry Out All the More

What Living with Epilepsy is Like

What is it like parenting a child with epilepsy? What is it like having epilepsy? Those feelings and experiences can be hard to define. Because the truth is, they change. Some days, living with epilepsy feels like: routine. On those days, ¬†epilepsy takes a backseat place in our daily life. We automatically pull supplements, load … Continue reading What Living with Epilepsy is Like

When Epilepsy Vacations with You (5)

"Crying is how your heart speaks, when your lips can't explain the pain you feel."

First Night on a Wish Vacation (4)

"To watch those you love in pain is unbearable...parents of suffering children prayed that God spare their children and give them the burden to carry instead. Please God...let it be me, not my children!" - Henri Landwirth, Gift of Life Loving parents of all children understand the heart expressed in this quote. Parents of ill … Continue reading First Night on a Wish Vacation (4)

Give Kids the World Village (3)

"There is a certain injustice when the innocent suffer, especially children, which touches something deep and profound in all of us. I have learned firsthand that many of life's most painful questions have no rational answers. It is impossible to rationalize why one child is afflicted with a life threatening disease and another is not. … Continue reading Give Kids the World Village (3)